for Jonathon this week. I decided to not take Jonathon swimming on Monday. I am glad that he did not remember. Believe it or not he does ask me sometimes on a Monday "Maggie" "Swim". But this week he did not.
I left her a message about his rash and that we would hopefully see her next week. I decided that I want his rash all gone first. Then I will let him go back. Then if he gets a rash again I will know 100% that its the pool water.
Today his rash looks good. It is almost all gone. This makes me happy. I will just keep Eucerin on him daily and hope it works.
I hope that we can figure something out because I don't want him to miss 6 months of swimming.
Jonathon - A Son who is loved very much, a brother to Andrew and Kenny, and a Master to Tiny Bubbles. This is his story.
Tuesday, November 29, 2011
Sunday, November 27, 2011
Picky Picky Picky
eater is what I now have. And I am not liking it. I don't even want to cook dinner anymore. It is so frustrating.
When Jonathon was around 2 he was a very picky eater. I just kept trying to get him to eat all of the different foods that we eat and eventually he took off. It was great. I could get him to eat just about anything except burger. To this day he hates any type of burger. He will just gag. So I don't push it.
But now he won't eat alot of food.
mashed potatoes...fried potatoes...hashbrowns...no potatoes
veggies....green beans...I have to fight with him and corn....goodness what a chore
soup and grill cheese....nope not happening
stew....not even a bite
I could go on and on....then I would have to cry again...
What does Jonathon eat.
Well he will eat pancakes.....waffles....cold cereal
pasta....spaghetti....ziti parmesan...macaroni n butter
hot dog... mac n cheese
bologna...cheese....goldfish - not a cracker
mini pop tarts
fruit snacks
ice cream
applesauce....chocolate pudding......pie
And he has won lately because I just don't want to deal with it so we eat and then he eats what is on his small list of items that he won't throw at me.
I need to get out of this funk and figure out how to get him eating good again. I know he can because he was.
When Jonathon was around 2 he was a very picky eater. I just kept trying to get him to eat all of the different foods that we eat and eventually he took off. It was great. I could get him to eat just about anything except burger. To this day he hates any type of burger. He will just gag. So I don't push it.
But now he won't eat alot of food.
mashed potatoes...fried potatoes...hashbrowns...no potatoes
veggies....green beans...I have to fight with him and corn....goodness what a chore
soup and grill cheese....nope not happening
stew....not even a bite
I could go on and on....then I would have to cry again...
What does Jonathon eat.
Well he will eat pancakes.....waffles....cold cereal
pasta....spaghetti....ziti parmesan...macaroni n butter
hot dog... mac n cheese
bologna...cheese....goldfish - not a cracker
mini pop tarts
fruit snacks
ice cream
applesauce....chocolate pudding......pie
And he has won lately because I just don't want to deal with it so we eat and then he eats what is on his small list of items that he won't throw at me.
I need to get out of this funk and figure out how to get him eating good again. I know he can because he was.
Saturday, November 26, 2011
Alot to think about
Jonathon has been taking swim lessons every Monday evening since August 2011. He has only missed a few Mondays because of him being sick once and then Andrew was sick and then teacher cancelled a couple of times for different reasons.
Now 2 weeks ago when he went swimming, he didn't have a nap that day. I was worried he would be grumpy and I was correct. He pulled the teachers glasses off and tried to throw them. He decided to pull his ear plugs out of his ears.....figuring "I'll teach her, I will pull these out and then I can't swim" He is very smart, but that didn't work, we just dried them and continued on. He really enjoys swimming and Miss Maggie is great with him.
Now when we go at 5p.m. he is usually in the water by 5:10p.m. and he swims until about 5:45p.m. The last time when he was getting out he was screaming, more than usual.....he always cries when he is done, because he doesn't want to be done, but this was different. So at first I thought that he got water in his ears...but he didn't and then when I took him into locker room his back was really really red........
I dressed him and took him home. The redness went away so I figured it was just chlorine, but it was ok.
Last week we didn't go, because Andrew was sick. On Tuesday I noticed a rash on Jonathon. On Wednesday it was all over his back and part of his front. I called the dr. They told me to give Benedryl and call back on friday if not better. In the meantime I thought allergic reaction and what did I do different. I bought a bounce dryer bar. I bought Winnie the Pooh lotion. Ok, lets throw the bounce bar out and rewash all the laundry. And stop using lotion. And give Benedryl.
On friday, a little better, but not better. Took him into doctors. As doctor was walking into the room to look at him it hit me.....and I said "Jonathon swims every Monday, I think this is rash from chlorine." Doc says "yes it is" to much chlorine. (DANG IT).
He told me to make sure I wash him with soap and water when he gets out of pool. And not too swim as long, but that he can still swim. Put Eucerin on him. Good to go.
So here is the deal. Do I let Jonathon continue to swim? He still has the rash....it looks alot better after I got the lotion on him, but do I want to put him through that anymore? Is he going to cooperate with me to hurry and get in shower and was off? This I already know is NOT going to happen. He is going to scream his little head off. Do I just cancel the rest of winter and hope summer will be better?
I hate that I have to make this decision....my son loves to swim..he loves the water and we were hoping that by spring he would be a full swimmer. i am pissed. I just want him to be able to spend time in the water. We could go back to the Ymca, but he was too cold last winter and we quit and Miss Maggie is no longer there. She is back at new swim place which is where the problem is.
I believe that I am burning him by letting him swim. I noticed it the last time he got out of the water.(red back and crying). I believe I already have my answer by just writing down my thoughts.
Is there anyone else that has had this problem? Any input would be great.
Deep down.....I think swimming is done for now......Jonathon may be sad.....but he won't hurt......
Thanks for listening.
Now 2 weeks ago when he went swimming, he didn't have a nap that day. I was worried he would be grumpy and I was correct. He pulled the teachers glasses off and tried to throw them. He decided to pull his ear plugs out of his ears.....figuring "I'll teach her, I will pull these out and then I can't swim" He is very smart, but that didn't work, we just dried them and continued on. He really enjoys swimming and Miss Maggie is great with him.
Now when we go at 5p.m. he is usually in the water by 5:10p.m. and he swims until about 5:45p.m. The last time when he was getting out he was screaming, more than usual.....he always cries when he is done, because he doesn't want to be done, but this was different. So at first I thought that he got water in his ears...but he didn't and then when I took him into locker room his back was really really red........
I dressed him and took him home. The redness went away so I figured it was just chlorine, but it was ok.
Last week we didn't go, because Andrew was sick. On Tuesday I noticed a rash on Jonathon. On Wednesday it was all over his back and part of his front. I called the dr. They told me to give Benedryl and call back on friday if not better. In the meantime I thought allergic reaction and what did I do different. I bought a bounce dryer bar. I bought Winnie the Pooh lotion. Ok, lets throw the bounce bar out and rewash all the laundry. And stop using lotion. And give Benedryl.
On friday, a little better, but not better. Took him into doctors. As doctor was walking into the room to look at him it hit me.....and I said "Jonathon swims every Monday, I think this is rash from chlorine." Doc says "yes it is" to much chlorine. (DANG IT).
He told me to make sure I wash him with soap and water when he gets out of pool. And not too swim as long, but that he can still swim. Put Eucerin on him. Good to go.
So here is the deal. Do I let Jonathon continue to swim? He still has the rash....it looks alot better after I got the lotion on him, but do I want to put him through that anymore? Is he going to cooperate with me to hurry and get in shower and was off? This I already know is NOT going to happen. He is going to scream his little head off. Do I just cancel the rest of winter and hope summer will be better?
I hate that I have to make this decision....my son loves to swim..he loves the water and we were hoping that by spring he would be a full swimmer. i am pissed. I just want him to be able to spend time in the water. We could go back to the Ymca, but he was too cold last winter and we quit and Miss Maggie is no longer there. She is back at new swim place which is where the problem is.
I believe that I am burning him by letting him swim. I noticed it the last time he got out of the water.(red back and crying). I believe I already have my answer by just writing down my thoughts.
Is there anyone else that has had this problem? Any input would be great.
Deep down.....I think swimming is done for now......Jonathon may be sad.....but he won't hurt......
Thanks for listening.
Saturday, November 12, 2011
Saturday Fun
Jonathon is so funny lately! He loves to play with Kenny. When it was still warm enough to go outside he would wait for Kenny to get home and hurry and ask if he would go out and play "guys" and get the toy guns.
They would go out back and run around pretending to be people and zombies.......Doesn't every little boy run around and play zombies......well maybe it used to be cowboys and indians, but now its zombies! It's so calming to watch.
Now it's cold and we are inside alot lately. So tonight as I was folding laundry I look over and Jonathon is taking his tools and sliding them under Kenny's back....and quietly telling him "shhhh" and then grabbing Kenny's nose and then you hear Kenny say "please .....no more"....and then they both laugh! So as I am watching I ask Jonathon "Are you a doctor?" and he says "yes" I then say are you a mad scientist?.....He stops....he thinks...and then says "YES" and then continues to torture Kenny. So I then ask Kenny what he has been watching or showing his little brother that he wants to be a mad scientist and torture him. Kenny of course responds......"I didn't do anything mom"
Well my little boy is very smart! And I am guessing its from watching Kenny play a zombie game on PS3. No I am not worried. He does not act out to other people. It is some sort of bond that him and Kenny share. If they are happy playing zombies.....then play zombies! How many 14yr. old brothers would still want to play with their 4yr. old brother. I too have a brother who is 10 years younger than me and you know what....we have an incredible bond....I wouldn't change anything! And I hope Kenny remains this close with Jonathon forever!!!!!
An end to our simple, but fun Saturday!!!!!
They would go out back and run around pretending to be people and zombies.......Doesn't every little boy run around and play zombies......well maybe it used to be cowboys and indians, but now its zombies! It's so calming to watch.
Now it's cold and we are inside alot lately. So tonight as I was folding laundry I look over and Jonathon is taking his tools and sliding them under Kenny's back....and quietly telling him "shhhh" and then grabbing Kenny's nose and then you hear Kenny say "please .....no more"....and then they both laugh! So as I am watching I ask Jonathon "Are you a doctor?" and he says "yes" I then say are you a mad scientist?.....He stops....he thinks...and then says "YES" and then continues to torture Kenny. So I then ask Kenny what he has been watching or showing his little brother that he wants to be a mad scientist and torture him. Kenny of course responds......"I didn't do anything mom"
Well my little boy is very smart! And I am guessing its from watching Kenny play a zombie game on PS3. No I am not worried. He does not act out to other people. It is some sort of bond that him and Kenny share. If they are happy playing zombies.....then play zombies! How many 14yr. old brothers would still want to play with their 4yr. old brother. I too have a brother who is 10 years younger than me and you know what....we have an incredible bond....I wouldn't change anything! And I hope Kenny remains this close with Jonathon forever!!!!!
An end to our simple, but fun Saturday!!!!!
Wednesday, November 9, 2011
Tuesday, November 8, 2011
Research Time
So now I have got to do some research. The teachers are finally going to use p e c cards. I started using those over 2 years ago and just took them down.
I think/thought we were done with those.
I think I can get an app for the Ipad to help Jonathon instead of investing in more p e c cards.
Research research research.........
I think/thought we were done with those.
I think I can get an app for the Ipad to help Jonathon instead of investing in more p e c cards.
Research research research.........
Labels:
4yr. old experiences,
celebration,
down syndrome
Monday, November 7, 2011
Discouraged
I have not been blogging the last few days because I can't figure out how to add a widget and then the link posting isn't working for me either so I am a little discouraged.
Jonathon is doing well. He is working very very hard on self feeding. Cereal is going great in the morning and I would show the video but its on my phone and I can't figure out how to post that either so I guess when I find time to actually sit down and relax I will figure all this mess out. Along with self feeding he has decided that he only likes a few items now. He used to be a really good eater and now he is being very picky.
Chicken, stuffing, rice, green beans, corn.......likes, but not lately!
Spaghetti......likes and still likes! He is my Italian guru! When he refuses to eat anything I will give him cereal, waffle, pancake, but after a few days of that I can't take it so then I make something pasta and he eats......
I hope this is short term. I do not want him to refuse to eat dinner. It makes me sad.
Jonathon is doing well. He is working very very hard on self feeding. Cereal is going great in the morning and I would show the video but its on my phone and I can't figure out how to post that either so I guess when I find time to actually sit down and relax I will figure all this mess out. Along with self feeding he has decided that he only likes a few items now. He used to be a really good eater and now he is being very picky.
Chicken, stuffing, rice, green beans, corn.......likes, but not lately!
Spaghetti......likes and still likes! He is my Italian guru! When he refuses to eat anything I will give him cereal, waffle, pancake, but after a few days of that I can't take it so then I make something pasta and he eats......
I hope this is short term. I do not want him to refuse to eat dinner. It makes me sad.
Wednesday, November 2, 2011
Tuesday, November 1, 2011
Fall Clean up



We spent some time outside last weekend putting away all the toys. We had to put all Jonathon's sand toys, playscape, trucks, wagon, and bikes away for winter. Basket ball hoops too.
We raked leaves, mowed the grass one more time and played.
Now we are ready for winter. I am really excited about Christmas this year. I think it's going to be great. Jonathon is older and I think he is going to be alot of fun. I am hoping that he likes the snow this year. So far he has not.
Time will tell.
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