Saturday, March 21, 2009
Happy Down Syndrome Day
Today is national Down Syndrome Day. I did my part by spreading awareness to my friends and family that did not know this day existed.
We hung out at home and watched movies. And took some pictures.
We also got pizza and pop for lunch. Jonathon ate pizza for the first time. No pictures of that though. Maybe next time.
Happy Down Syndrome Day to everyone and my precious boy.
Close up!
Watching "Cars" with Daddy
Playing "Puff Balls" with Kenny
Hi Mommy
Mommy and me
Happy Down Syndrome Day 2009
We hung out at home and watched movies. And took some pictures.
We also got pizza and pop for lunch. Jonathon ate pizza for the first time. No pictures of that though. Maybe next time.
Happy Down Syndrome Day to everyone and my precious boy.
Close up!
Watching "Cars" with Daddy
Playing "Puff Balls" with Kenny
Hi Mommy
Mommy and me
Happy Down Syndrome Day 2009
Friday, March 20, 2009
Outside Finally
Last Weekend we were finally able to take Jonathon outside to play. We also had a few days during this past week. He really enjoys being outside. I cannot wait for our warm weather to come back. It is back to the 20's and 40's again.
Friday, March 13, 2009
Whats new
We went back to Dr. Pediatrician on Thursday. Finish sinus medication. Keep using saline for the nose. Benedryl at night time for nose. And use your nose spray everyday until you go back to Dr. ENT in May. Medicine, medicine, medicine! Oh yeah and keep using the Pulmicort once a day.
I so cannot wait for the weather to change so we can be behind these colds. Of course I totally forgot about the Benedryl last night before bedtime. I never do that, guess I need to get some rest and recharge.
Potty training is going well. We have moved up to even wearing a pull up out in public. Jonathon wore a pull up to his dr. appt. and used the restroom twice while we were there and peed. He is becoming such a big boy! Yes we do have our occassional accidents. Mostly just damp(pee). He has only had 3 poop accidents with me. He had 2 accidents while my sis was watching him Wednesday night. But I am not concerned because she doesn't know our potty routine just yet and he always acts different when I am not around. I guess I need to get out more often. Maybe this summer.
Jonathon has missed alot of school lately, but I have learned the hard way when he is sick just to keep him home until he is better. I want him to get over this without catching something else. He is finally looking better, so hopefully we can go back to school on Tuesday next week.
First time this morning, I did not get the playpen out to put Jonathon in so I could take a shower. He is pretty good about sitting down and watching his Cars movie for a little while(30minutes or so). So I left the bathroom door open so I could hear him and so he could get to me if he needed too. He did great. He was right where I left him and is still sitting there right now watching his movie. No more playpen!!!!
I am soooo proud of you Jonathon and all you have accomplished so far. I am soooo proud to be your mommy! Makes me sad to see you grow up, but makes me happy that you are becoming such a big boy!!!!
I so cannot wait for the weather to change so we can be behind these colds. Of course I totally forgot about the Benedryl last night before bedtime. I never do that, guess I need to get some rest and recharge.
Potty training is going well. We have moved up to even wearing a pull up out in public. Jonathon wore a pull up to his dr. appt. and used the restroom twice while we were there and peed. He is becoming such a big boy! Yes we do have our occassional accidents. Mostly just damp(pee). He has only had 3 poop accidents with me. He had 2 accidents while my sis was watching him Wednesday night. But I am not concerned because she doesn't know our potty routine just yet and he always acts different when I am not around. I guess I need to get out more often. Maybe this summer.
Jonathon has missed alot of school lately, but I have learned the hard way when he is sick just to keep him home until he is better. I want him to get over this without catching something else. He is finally looking better, so hopefully we can go back to school on Tuesday next week.
First time this morning, I did not get the playpen out to put Jonathon in so I could take a shower. He is pretty good about sitting down and watching his Cars movie for a little while(30minutes or so). So I left the bathroom door open so I could hear him and so he could get to me if he needed too. He did great. He was right where I left him and is still sitting there right now watching his movie. No more playpen!!!!
I am soooo proud of you Jonathon and all you have accomplished so far. I am soooo proud to be your mommy! Makes me sad to see you grow up, but makes me happy that you are becoming such a big boy!!!!
Wednesday, March 11, 2009
Conference
Well I can honestly say now that I have been to a conference based on inclusion. Gilbert and I were able to attend while my great sis watched all 3 boys. Thanks again sis!!!!
I loved it. We first listened to Sara, a self advocate who is building herself an inclusive life as an adult. She was wonderful to listen too. We didn't catch her age, but she graduated with a diploma in 1994. She is originally from Grand Rapids Michigan and now is living in Benzonia Michigan. She lives alone, and she purchased her home. She has a job and lots of friends and supporters. She works 30 hours per week, she told us how she didn't like math and was not very good at it, but now she is doing better and can balance her checkbook. She has a pet cat that lives with her and said "NO she does not want a roomate."
The second speaker I just adored. Her name was Cynthia and she is from Oakland Michigan. Her son Jordan graduated in 2008 from Rochester High with a diploma and is now in Oakland Comm. College. And we got to hear from her pretty much her short version life with Jordan and the school system. I learned alot from her. Two of my new words are:Acquisition of Knowledge, and Modification. I love these 2 sayings and will definitely put them to good use.
I am very glad that Gilbert and I had the opportunity to go and I will definitely make sure that I go to more in the future.
I loved it. We first listened to Sara, a self advocate who is building herself an inclusive life as an adult. She was wonderful to listen too. We didn't catch her age, but she graduated with a diploma in 1994. She is originally from Grand Rapids Michigan and now is living in Benzonia Michigan. She lives alone, and she purchased her home. She has a job and lots of friends and supporters. She works 30 hours per week, she told us how she didn't like math and was not very good at it, but now she is doing better and can balance her checkbook. She has a pet cat that lives with her and said "NO she does not want a roomate."
The second speaker I just adored. Her name was Cynthia and she is from Oakland Michigan. Her son Jordan graduated in 2008 from Rochester High with a diploma and is now in Oakland Comm. College. And we got to hear from her pretty much her short version life with Jordan and the school system. I learned alot from her. Two of my new words are:Acquisition of Knowledge, and Modification. I love these 2 sayings and will definitely put them to good use.
I am very glad that Gilbert and I had the opportunity to go and I will definitely make sure that I go to more in the future.
Monday, March 9, 2009
Our First ENT appointment
I am not liking this new time change at all! Jonathon was up at 6:30a.m. this morning, I was really hoping that he would now sleep in until 7:30a.m. But no such luck for me. Of course he didn't want to eat at 7a.m. as usual because that was really 6a.m. so we skipped breakfast until almost 8a.m.
We started our day out ahead of schedule and then it went down hill fast. I even had everything packed last night except the cheez pons-these I had to hurry and cut up while he was waiting in the van to go.
We were supposed to pick up my sis at 10a.m. as she is calling me at 10:20a.m. wondering if we got our signals mixed up? Nope just me running late as usual and now with a potty trainer, we are always behind. But we made up good time getting ourselves to the doctor on time-actually early!
Then there we sat......and sat....and sat.....We ate some cheez pons, then we drank some water, then we ate some more cheez pons, then we read Clifford the Dog book,then rip it out of Auntie's hands and throw it-he is Quick! Then we sat.....and sat.....and sat.....Okay now I am wondering why they didn't even call our name for our paperwork. So sis and I took turns using the restroom and then finally after 1 hour we were finally called back.
Dr. ENT was very nice. Jonathon also liked him alot and was very comfortable with him. He asked many more questions than I imagined, but I was prepared(good) My sis said"He just learned our whole life in about 5 minutes" Guess she was impressed? Jonathon got to pick a sucker for good behavior. Of course he has no clue what it is and didn't like the crinkly paper so we put it aside for now.
Sooo our results are: The tympanogram is still showing fluid and dr. ENT also seen some fluid. Jonathon is registering on the chart now though where before he didn't even register. Could be because of his sinus infection. We are going to go back in 2 months for a recheck. Continue the saline drops and added a new prescription~nose spray~Fluticasone-1spray into each nostril once daily. Seems how he has only had one ear infection he is not really worried yet about tubes. A little concerned that this is his 3rd sinus infection since September and this one was so bad. Could be that his adnoids need to be removed. We go back May 11.
I will take these results for now. I am glad that the tympanogram has changed and he is at least showing up on the chart now. I still don't like the fact that he still has fluid in his ears. I am not looking forward to starting nose spray tomorrow. I hope he doesnt have to have tubes put in. Will not stress over it for now.(at least try not too) I do like this doctor.
Stopped off at the restroom when we were through to see if Jonathon needed/would use the potty. He didn't like it and was scared. So I decided to turn him around and hold him up. This worked like a charm, he peed for me and lots. Great Job, my big big boy.
Afterwards we stopped at McDonalds to grab some lunch. Tried a fish sandwich with Jonathon. He ate a little , but didn't like it so we had our normal applesauce and country vegetable baby food. Sis and mommy had coupon for buy one Big Mac get one free.
Packed everyone back up in the van and headed off to Walmart. Right before we drove in, Jonathon fell asleep. Exhausted! He had been awake all day since 6:30a.m. Now its 2p.m.
So I got the big stroller out of back and layed down the seat. Put Jonathon in covered him up and then covered stroller with bigger blanket for darkness. We were in Walmart for over 1 hour and he slept the whole time. Much needed rest. He woke up on the way out and was in a very good mood.
Now it's after 3:30p.m. and when we pulled out onto main road we could see Daddy's truck up ahead. But he accidentally left his phone on counter this morning, so had no way of telling him to wait up. We tried to catch him, but too much traffic and we had to stop on the way home to get medicine. Oh well, maybe next time.
Stopped to get his prescription filled, would take them 30 minutes. Sis had to stop off and pay a bill and her house was right around the corner so we went to her house so Jonathon could use the potty.(I checked him at walmart on the way out and he was dry). Got to her house and hurried to the bathroom, set him up on the big toilet and he peed a little and little poop. GOOD BOY!!! I knew his tummy was still full, so I turned him around and held him up and told him to pee like a good boy. And he peed a whole bunch. He learned today how to pee standing up(well standing,mommy holding you up)But it worked. He just doesnt like the bigger toilets.
Finished up, got our medicine, dropped Auntie back off at her house. Said our goodbyes and headed for home. Busy busy day. We left at 10:10a.m. and pulled in at 5:15p.m.
We started our day out ahead of schedule and then it went down hill fast. I even had everything packed last night except the cheez pons-these I had to hurry and cut up while he was waiting in the van to go.
We were supposed to pick up my sis at 10a.m. as she is calling me at 10:20a.m. wondering if we got our signals mixed up? Nope just me running late as usual and now with a potty trainer, we are always behind. But we made up good time getting ourselves to the doctor on time-actually early!
Then there we sat......and sat....and sat.....We ate some cheez pons, then we drank some water, then we ate some more cheez pons, then we read Clifford the Dog book,then rip it out of Auntie's hands and throw it-he is Quick! Then we sat.....and sat.....and sat.....Okay now I am wondering why they didn't even call our name for our paperwork. So sis and I took turns using the restroom and then finally after 1 hour we were finally called back.
Dr. ENT was very nice. Jonathon also liked him alot and was very comfortable with him. He asked many more questions than I imagined, but I was prepared(good) My sis said"He just learned our whole life in about 5 minutes" Guess she was impressed? Jonathon got to pick a sucker for good behavior. Of course he has no clue what it is and didn't like the crinkly paper so we put it aside for now.
Sooo our results are: The tympanogram is still showing fluid and dr. ENT also seen some fluid. Jonathon is registering on the chart now though where before he didn't even register. Could be because of his sinus infection. We are going to go back in 2 months for a recheck. Continue the saline drops and added a new prescription~nose spray~Fluticasone-1spray into each nostril once daily. Seems how he has only had one ear infection he is not really worried yet about tubes. A little concerned that this is his 3rd sinus infection since September and this one was so bad. Could be that his adnoids need to be removed. We go back May 11.
I will take these results for now. I am glad that the tympanogram has changed and he is at least showing up on the chart now. I still don't like the fact that he still has fluid in his ears. I am not looking forward to starting nose spray tomorrow. I hope he doesnt have to have tubes put in. Will not stress over it for now.(at least try not too) I do like this doctor.
Stopped off at the restroom when we were through to see if Jonathon needed/would use the potty. He didn't like it and was scared. So I decided to turn him around and hold him up. This worked like a charm, he peed for me and lots. Great Job, my big big boy.
Afterwards we stopped at McDonalds to grab some lunch. Tried a fish sandwich with Jonathon. He ate a little , but didn't like it so we had our normal applesauce and country vegetable baby food. Sis and mommy had coupon for buy one Big Mac get one free.
Packed everyone back up in the van and headed off to Walmart. Right before we drove in, Jonathon fell asleep. Exhausted! He had been awake all day since 6:30a.m. Now its 2p.m.
So I got the big stroller out of back and layed down the seat. Put Jonathon in covered him up and then covered stroller with bigger blanket for darkness. We were in Walmart for over 1 hour and he slept the whole time. Much needed rest. He woke up on the way out and was in a very good mood.
Now it's after 3:30p.m. and when we pulled out onto main road we could see Daddy's truck up ahead. But he accidentally left his phone on counter this morning, so had no way of telling him to wait up. We tried to catch him, but too much traffic and we had to stop on the way home to get medicine. Oh well, maybe next time.
Stopped to get his prescription filled, would take them 30 minutes. Sis had to stop off and pay a bill and her house was right around the corner so we went to her house so Jonathon could use the potty.(I checked him at walmart on the way out and he was dry). Got to her house and hurried to the bathroom, set him up on the big toilet and he peed a little and little poop. GOOD BOY!!! I knew his tummy was still full, so I turned him around and held him up and told him to pee like a good boy. And he peed a whole bunch. He learned today how to pee standing up(well standing,mommy holding you up)But it worked. He just doesnt like the bigger toilets.
Finished up, got our medicine, dropped Auntie back off at her house. Said our goodbyes and headed for home. Busy busy day. We left at 10:10a.m. and pulled in at 5:15p.m.
Sunday, March 8, 2009
He Never Stops
I do have to say that Jonathon is something else. That is for sure. He just keeps on surprising me and bringing tears of joy to my eyes alot lately. Tonight I had paperwork to finish up for our appointment in the morning so daddy sat down to give him his bottle and rock him to sleep. After his bottle was empty I kept hearing Jonathon whine(like he was tearing up). I waited, kind of looked over, but didn't get involved with him and daddy. It didn't stop and then I heard Gilbert ask him what was wrong and why was he sooo sad. Well I thought it was because I have been the only one putting him to bed since he became sick last week. He hasn't wanted anyone else. I got up to go over and see if Jonathon wanted me instead. Gilbert informed me that he(Jonathon)was passing alot of gas.......I told Jonathon "Lets go potty" He whined a little because it's supposed to be night night time. I reassured him that it was ok, that we would go potty and then go back to rocking. Well......as soon as I got him on the potty he went.......We talked and played with his fishy for a few minutes. Got him up to get his diaper back on and.......He had peed AND pooped!!!!! What a good boy! We hurried and told daddy and did "Hoorays for Jonathon" I love you soooo much Jonathon!!!!! And that goes back to my title...He never Stops AMAZING me!
Saturday, March 7, 2009
Friday, March 6, 2009
Another Accomplishment
While I was washing dishes Jonathon was around the corner in the living room digging into the toybox. Yelling in his own language to me about something. So I said" Do you need help" He crawled away from the toybox over to door way where I could see him and signed please to me. So I went to see what he needed and he pointed to a car he could not reach. Wow! Communication is Awesome! Great Job Peanut Butter!!!!The Accomplishment: To actually not continue to yell at me and actually crawl away and sign to me and then go back and show me!!!!
Later on in the afternoon he was in front of the t.v. and picked up the Cars movie case and again in Jonathon language was telling me something. So I asked him if he wanted to watch the Cars movie? He handed me the case and signed "more" Talk about a great day!!! My baby is growing up more and more everyday.
Later on in the afternoon he was in front of the t.v. and picked up the Cars movie case and again in Jonathon language was telling me something. So I asked him if he wanted to watch the Cars movie? He handed me the case and signed "more" Talk about a great day!!! My baby is growing up more and more everyday.
Thursday, March 5, 2009
Miserable Little Boy
Is this the look of a child coming down with SOMETHING?
SOMETHING is happening~possibly sinus infection? Went to see doctor. Doctor says just a head cold. Benedryl and saline drops. I think it's something more, but ok.
Ummmmm okay, better call and go back to the doctor. This looks like possible pinkeye. Not a normal cold. Confirmation: Yes we have pinkeye and a head cold. (Supposedly) Eye drops for pinkeye and continue Benedryl for the cold.
YIKES! What happen? This is how I found Jonathon at 5:30a.m. on Monday, really swollen and gunk everywhere from pinkeye. AND now which you can't see, he is soooo stuffed up and having a hard time breathing.
Doctor says to do more breathing treatments. This did not help. Jonathon got 10x worse overnight. Oh and now mommy has pinkeye too.
Spent the morning back at the doctors again. This time my diagnosis was FINALLY confirmed! Sinus Infection and severe sore throat. Stop extra breathing treatments. Get antibiotic and go home and rest. No school. AND continue eye drops.
This is where we have been sleeping. In the living room in the beanbag. Jonathon is able to breathe much better in this position.
Nothing sweeter than watching a baby sleep.
Well this has been a L O N G week for Jonathon and I! We are finally on the road to recovery. His nose is running better so I can get the stuff sucked out for him and he is not having such a hard time breathing. Took a pretty good morning nap,as you see from picture I still put him in the beanbag, did not want to take any chances of him not being able to breathe in crib. Hopefully tonight he will be able to go back to his bed and us back to ours.(The couch is NOT comfy) Less whiny today too, but still refusing to eat. His throat must be soooo sore. So our new diet for now consist of chocolate pudding, tapioca pudding, applesauce, orange jello, and orange yogurt. Right now I have homemade chicken soup cooking and I am hoping he will at least try some tonight. Not sure what we will be doing for lunch. My mac and cheese king is on strike for now. Maybe ICE CREAM!!!!!
Sunday, March 1, 2009
Visit to Doctor Saturday and Sunday
This was taken this afternoon
On Friday night around 8:30p.m. Jonathon started stirring in the crib and snoring and breathing hard. So I knew something was up. Saturday morning I had to take his older brother Andrew in to see the doctor for back pain so I decided to take Jonathon along for a quick look. Found out Andrew pulled a muscle and will be better in a couple of days. Dr. looked at Jonathon real quick for me and said he has a cold. (Benedryl and saline). Good news.
Saturday afternoon I noticed his eyes were running and really watery. So I kept a close eye on him. By Saturday evening he had gunk coming out of corner and bottom of his eyes. Started thinking something was up and this is not normal for a cold. Put him to bed last night and he slept better, but still not himself.
This morning when Jonathon and I got up at 6:20a.m. we went and used the potty like we always do. Didn't notice at first because I only turn on a dim light in the bathroom in the morning(he does not like bright light), but we were playing with the duckies(while waiting to pee/poop) and he looked up at me AND oh my his eyelashes were all caked up with gunk.(reminded me of my kittens growing up)Poor poor baby. We have never experienced this. One eye was worse than the other, but close enough. We finished up in the potty and ventured out to the kitchen to get some warm water and get cleaned up. Afterwards I noticed that they just continued to run and gunk coming out so much that I called the Dr. at 8:30a.m. Told them I think Jonathon has pink eye. They told us to come right in and yes it was confirmed he has pink eye. Dr. was totally amazed He said"Wow I just seen you yesterday morning and he was fine" Thank goodness I am so in tune with Jonathon and know when something is up. So he is on eye drops for 3x day 2 drops per eye for 5 days. Definitely staying home Tuesday from school, we will play it by ear for Thursday.
Overall besides being a little tired, he is still in pretty good spirits and still being a big boy using the potty for me!!!!
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