Once again we are waiting another 6 weeks for a recheck on Jonathon's ears. This time he has no fluid in the right ear and some fluid in the left ear.
I am beginning to get frustrated again too. I don't want to put Jonathon through another surgery if he doesn't need it. I don't want to put off another surgery if it's the best solution for Jonathon.
I have been going to ENT appointments for almost 1 year now. This all started last January.
Jonathon has only had 1 ear infection. Jonathon has passed 3 booth hearing tests. And this is the first year that we have made it through August, September and October without a sinus infection. The fluid goes away and then comes back. At first I thought this was a good thing, but after our appointment Monday night I am beginning to question my judgement. I think it's time to just let him have the surgery.
Now that Jonathon is older and beginning to talk quite well I do not want to hold him back and I know when there is fluid everything is muffled. I do not know from experience, I have never had this problem.
We go back in December, if there is fluid still we will be discussing surgery.
So now I am asking for information. Instead of me searching the web I know one friend(Stephanie and Aiden)www.aisforaiden.com who is always full of good information and knowledge. If you have any please email me!
Friday, November 13, 2009
Wednesday, November 4, 2009
We had an accident in house
Jonathon shares a bedroom with my husband and me. So i have to rearrange the furniture to accomodate us sometimes.
Our bedroom is right off of the living room and one wall is off the kitchen and entry door to come inside house. It is loud at times and the light bothers Jonathon at times. We cannot completely close the bedroom door because then it's too cold in there for Jonathon.
I figured out a way to rearrange the furniture and get Jonathon off of one wall and block the light with a dresser from another wall. In order to do this and make it so our bed fit I had to take off the wooden footboard ~ which we had done last winter so no big deal ~ I thought. So besides running into a problem ~ having the bed fall apart on me ~ I got it all done and am happy with it. The dresser does block the light from the living room pretty good and Jonathon seems to sleep a little better.
Monday morning I woke jumped up to hearing a big loud thud and Jonathon screaming! Remember Jonathon is in a toddler bed so he can get out. I jumped out of bed to see him trying to get up from foot of bed on the floor. Oh my god is all I thought ~ his head and his face. He had fallen onto the metal frame of our bed. There is a portion that sticks out since I took off the wooden footboard. I grabbed him and went to the kitchen to get his boo boo puppy(ice pack). I then returned to the bedroom and laid him on my bed to look him over. He was upset, but seemed to be o.k. I couldn't believe it, I didn't see a mark anywhere on his head, a small scratch by his eye, but overall he seemed o.k. This bothered me, I heard him fall, it was a very loud thud and I knew there had to be a mark somewhere on his head. So I put him down after a good hug for a few minutes and we went to go potty.
After he finished I let him in bathroom with me. He started getting into mischief as usual so I told him to look at me. At first he didn't, then I said again "Jonathon, look at mommy". He looked up at me and then started screaming all over again. I didn't see anything. I told him to come to me and I said "let me look" you are crying for some reason and I need to find it! All I can say is "OMG!!" I finally found where he hurt himself. It was under his chin all the way down into his neck. I seen a mark that I didn't know if it was a puncture wound, so I immediately called my husband to come back home. By the time Gilbert got back home I had Jonathon calmed down and was able to look him over. Luckily he somehow scraped himself when he fell onto the piece of frame. Thank God, if he would have just landed full force onto the frame across his neck. I can honestly say this is the first time Jonathon scared me.
Yes I have been scared about surgery and medical issues along the way, but this is his first real boo boo and oh my, it was scary at first! The doctor said to keep an eye on him and that is what I have been doing. His throat seemed to be sore yesterday morning, but by dinnertime he ate with no problem. He is awake this morning and seems to be back to his happy self. Another lesson learned! Don't assume all is ok! I feel so terrible that this accident happened. I should have checked out the situation a little better. Last year he wasn't as old and he was in the crib.
Oh and I did fix the bed. I pushed the mattress toward the foot of the bed and wrapped a blanket around the metal piece.
Here are some pictures.
Jonathon's BOO BOO
Our bedroom is right off of the living room and one wall is off the kitchen and entry door to come inside house. It is loud at times and the light bothers Jonathon at times. We cannot completely close the bedroom door because then it's too cold in there for Jonathon.
I figured out a way to rearrange the furniture and get Jonathon off of one wall and block the light with a dresser from another wall. In order to do this and make it so our bed fit I had to take off the wooden footboard ~ which we had done last winter so no big deal ~ I thought. So besides running into a problem ~ having the bed fall apart on me ~ I got it all done and am happy with it. The dresser does block the light from the living room pretty good and Jonathon seems to sleep a little better.
Monday morning I woke jumped up to hearing a big loud thud and Jonathon screaming! Remember Jonathon is in a toddler bed so he can get out. I jumped out of bed to see him trying to get up from foot of bed on the floor. Oh my god is all I thought ~ his head and his face. He had fallen onto the metal frame of our bed. There is a portion that sticks out since I took off the wooden footboard. I grabbed him and went to the kitchen to get his boo boo puppy(ice pack). I then returned to the bedroom and laid him on my bed to look him over. He was upset, but seemed to be o.k. I couldn't believe it, I didn't see a mark anywhere on his head, a small scratch by his eye, but overall he seemed o.k. This bothered me, I heard him fall, it was a very loud thud and I knew there had to be a mark somewhere on his head. So I put him down after a good hug for a few minutes and we went to go potty.
After he finished I let him in bathroom with me. He started getting into mischief as usual so I told him to look at me. At first he didn't, then I said again "Jonathon, look at mommy". He looked up at me and then started screaming all over again. I didn't see anything. I told him to come to me and I said "let me look" you are crying for some reason and I need to find it! All I can say is "OMG!!" I finally found where he hurt himself. It was under his chin all the way down into his neck. I seen a mark that I didn't know if it was a puncture wound, so I immediately called my husband to come back home. By the time Gilbert got back home I had Jonathon calmed down and was able to look him over. Luckily he somehow scraped himself when he fell onto the piece of frame. Thank God, if he would have just landed full force onto the frame across his neck. I can honestly say this is the first time Jonathon scared me.
Yes I have been scared about surgery and medical issues along the way, but this is his first real boo boo and oh my, it was scary at first! The doctor said to keep an eye on him and that is what I have been doing. His throat seemed to be sore yesterday morning, but by dinnertime he ate with no problem. He is awake this morning and seems to be back to his happy self. Another lesson learned! Don't assume all is ok! I feel so terrible that this accident happened. I should have checked out the situation a little better. Last year he wasn't as old and he was in the crib.
Oh and I did fix the bed. I pushed the mattress toward the foot of the bed and wrapped a blanket around the metal piece.
Here are some pictures.
our bed last winter - notice footboard
This is frame where footboard is missing -
he was headed back toward me and tripped and fell onto this
piece of the bed in the dark at 5:15a.m.
Jonathon's BOO BOO
Monday, November 2, 2009
Our Holloween
I understand that I am late posting about Holloween, but I have been extremely busy chasing a little boy around to put his glasses back on. My new language consist of "NO" "Put these back on"
Jonathon did not go out, it was just too cold and he just got over being sick. So we let him run around with his costume on inside for a few minutes. He was very cute!
Jonathon did not go out, it was just too cold and he just got over being sick. So we let him run around with his costume on inside for a few minutes. He was very cute!
Friday, October 30, 2009
Glasses are here
Jonathon and I went out yesterday and picked up his glasses again. You see the first pair were made wrong;the lense had a flaw in it;he was supposed to wear them for our "Buddy Walk", but we couldn't. We have been keeping this secret from most of our friends and family. Not that it's a big deal;we just wanted Jonathon to have time to adjust before they all started coming out of the woodwork to see him(voice their opinion). Okay, maybe mommy needed time to adjust too, before I put up with everyone else and their comments.
Yesterday was rough. Jonathon was very sad ~ He didn't want to wear the glasses. He would stick out his bottom lip and it crushed my heart. I didn't stop though. I kept putting them back on. Let's just say by dinnertime I was extremely frustrated AND very glad that it was almost bedtime. EXHAUSTION is an understatement.
And lets remember if you missed the previous post: Jonathon is wearing glasses for farsightedness and lazy eye. Same symptoms his father has. His father has worn glasses since he was 3. Jonathon could out grow this one day~ not a promise and not going to worry about that. Not making excuses ~ this could be the result of his extra chromosome, but it also could just be plain ole HEREDITARY!
Yesterday before glasses
Yesterday was rough. Jonathon was very sad ~ He didn't want to wear the glasses. He would stick out his bottom lip and it crushed my heart. I didn't stop though. I kept putting them back on. Let's just say by dinnertime I was extremely frustrated AND very glad that it was almost bedtime. EXHAUSTION is an understatement.
And lets remember if you missed the previous post: Jonathon is wearing glasses for farsightedness and lazy eye. Same symptoms his father has. His father has worn glasses since he was 3. Jonathon could out grow this one day~ not a promise and not going to worry about that. Not making excuses ~ this could be the result of his extra chromosome, but it also could just be plain ole HEREDITARY!
Yesterday before glasses
Don't like these mommy!
Getting used to glasses
There's my happy boy!
Today has been a better day! We have had a few moments, but I have to say overall he is doing pretty good keeping the glasses on. I think they are a little crooked now;I tried to fix them at lunchtime but not sure if I did. I will let the expert(daddy) take a look when he gets home later. I decided yesterday before the big brothers got home that the best way to go about Jonathon wearing glasses was to ignore the fact that Jonathon is wearing glasses. I even text Andrew to let him know this and to tell Kenny before they came in. I know all they wanted to say was "oh your sooo cute" "I like your glasses" but they didn't. They did just what I had asked of them and for that they are 2 great big brothers. And my theory is working. As long as we don't make a big deal about it he seems to be ok overall. AND I have been wearing my glasses more to show him that we need to wear our glasses. (mine are just for when I am on the computer or reading).
Jonathon is napping now and resting his little eyes. Then we will continue our day;learning to like our new glasses!
This ""IS" my Jonathon!
Monday, October 26, 2009
Saturday, October 24, 2009
Random Thoughts
Jonathon and I have had a pretty quiet week this week.
1. Monday ~ We did absolutely nothing ~ But hang out
2. Tuesday~ School cancelled ~ both teachers sick
3. Tuesday afternoon ~ went to Dr. Braces and picked up old braces ~ new velcro put on
4. Wednesday - woke up to no power ~ packed up and went to Rylee's house for breakfast. ~ then we came home and got dressed and went shopping
5. Thursday ~ School cancelled O.T. teacher sick ~ stayed home
6. Friday ~ Playdate with Rylee cancelled ~ stayed home ~ Jonathon coming down with a cold
During all this past week I waited for a phone call from the Optician. They are remaking Jonathon's glasses because I found a wave in the lense. They were supposed to be rushed, but I am not sure what kind of rush. The whole week went by and NOTHING. Will be calling on Monday.
Jonathon spent alot of time drawing on his easel with the marker side. He is now doing really well. When we first tried in July he kept holding the marker upside down and coloring his hands. So I just let him do the chalk side. Well now he is able to do the marker side. I am very proud of him because he is trying really hard to do circles. They are not exactly correct circles, but you can tell its not just a line any longer. Great job son!!!!
Friday night was rough on Jonathon, he was having a hard time breathing; I am thinking this is the start of a sinus infection. He has been doing awesome. We made it through the whole summer with nothing. Last year his first sinus infection was in September so this is good, it's almost November. I had Andrew get a ride uptown this morning to buy Jonathon some Benedryl. Gave him that and Tylenol(slight fever) and he is breathing much better now. Hopefully we can nip this in the butt and it not turn into a sinus infection.
Looks like no school for Jonathon this week.
Called Dr. Pediatrician to schedule flu shot ~ they are all gone. Jonathon has been added to the list and they will get back with us. BUMMER
Jonathon is doing great eating finger foods. He really enjoys being a big boy while eating cheez pons and goldfish crackers and graham crackers. I just sit and watch in total amazement, it's been a long time coming and I am sooo happy for him. He really concentrates too, it's precious and brings tears to my eyes.
We are still practicing on spoon and fork alone. He is doing good for a start with the spoon feeding. We try on yogurt and pudding. Sometimes mommy gets so busy at dinner time that I just forget and just do it. I watched Supernanny last night and had a good reality check when the father was feeding his 3yr. old. Ummmm I need to just take the time to let Jonathon try and not be so rushed. It makes me mad that hubby doesn't help out more at dinnertime. But somehow someway Jonathon and I will figure out how to get it done. We always do!!!!
I have changed feeding schedule too.
7a.m. breakfast
9a.m. snack
11a.m. snack
12p.m. lunch
3p.m. snack
5-5:30p.m. dinner
7-7:30p.m. dessert
8p.m. bedtime
I added a snack in there and letting him stay up a little longer. I am working on getting him to just go to bed.(I still rock him). I love rocking Jonathon, but he needs to learn to just go in and go to sleep. I am hoping by Christmas time we will have this accomplished.
Thinking about switching bedrooms back so our room(Jonathon)is in back of house for my quiet. Right now we are in bigger room but its right off of the living room and kitchen and it gets loud at nighttime. He moves around alot and I think it's the lights and noise. We will see. Will let ya know what I decide.
Oh and our new words are "MINE" "Kenny"(really clear now). trying really hard to say "please"
1. Monday ~ We did absolutely nothing ~ But hang out
2. Tuesday~ School cancelled ~ both teachers sick
3. Tuesday afternoon ~ went to Dr. Braces and picked up old braces ~ new velcro put on
4. Wednesday - woke up to no power ~ packed up and went to Rylee's house for breakfast. ~ then we came home and got dressed and went shopping
5. Thursday ~ School cancelled O.T. teacher sick ~ stayed home
6. Friday ~ Playdate with Rylee cancelled ~ stayed home ~ Jonathon coming down with a cold
During all this past week I waited for a phone call from the Optician. They are remaking Jonathon's glasses because I found a wave in the lense. They were supposed to be rushed, but I am not sure what kind of rush. The whole week went by and NOTHING. Will be calling on Monday.
Jonathon spent alot of time drawing on his easel with the marker side. He is now doing really well. When we first tried in July he kept holding the marker upside down and coloring his hands. So I just let him do the chalk side. Well now he is able to do the marker side. I am very proud of him because he is trying really hard to do circles. They are not exactly correct circles, but you can tell its not just a line any longer. Great job son!!!!
Friday night was rough on Jonathon, he was having a hard time breathing; I am thinking this is the start of a sinus infection. He has been doing awesome. We made it through the whole summer with nothing. Last year his first sinus infection was in September so this is good, it's almost November. I had Andrew get a ride uptown this morning to buy Jonathon some Benedryl. Gave him that and Tylenol(slight fever) and he is breathing much better now. Hopefully we can nip this in the butt and it not turn into a sinus infection.
Looks like no school for Jonathon this week.
Called Dr. Pediatrician to schedule flu shot ~ they are all gone. Jonathon has been added to the list and they will get back with us. BUMMER
Jonathon is doing great eating finger foods. He really enjoys being a big boy while eating cheez pons and goldfish crackers and graham crackers. I just sit and watch in total amazement, it's been a long time coming and I am sooo happy for him. He really concentrates too, it's precious and brings tears to my eyes.
We are still practicing on spoon and fork alone. He is doing good for a start with the spoon feeding. We try on yogurt and pudding. Sometimes mommy gets so busy at dinner time that I just forget and just do it. I watched Supernanny last night and had a good reality check when the father was feeding his 3yr. old. Ummmm I need to just take the time to let Jonathon try and not be so rushed. It makes me mad that hubby doesn't help out more at dinnertime. But somehow someway Jonathon and I will figure out how to get it done. We always do!!!!
I have changed feeding schedule too.
7a.m. breakfast
9a.m. snack
11a.m. snack
12p.m. lunch
3p.m. snack
5-5:30p.m. dinner
7-7:30p.m. dessert
8p.m. bedtime
I added a snack in there and letting him stay up a little longer. I am working on getting him to just go to bed.(I still rock him). I love rocking Jonathon, but he needs to learn to just go in and go to sleep. I am hoping by Christmas time we will have this accomplished.
Thinking about switching bedrooms back so our room(Jonathon)is in back of house for my quiet. Right now we are in bigger room but its right off of the living room and kitchen and it gets loud at nighttime. He moves around alot and I think it's the lights and noise. We will see. Will let ya know what I decide.
Oh and our new words are "MINE" "Kenny"(really clear now). trying really hard to say "please"
Friday, October 23, 2009
Potty Scotty - Urinal for Boys
Jonathon loves his new potty! Urinal. It is working out awesome! Now when we say "Lets go Potty" it doesn't take us as long to get him to stop what he is doing and going. I think he really enjoys the fact that he can go in there, not take all his clothes off, pee and be on his merry away in about 20 seconds!
He is becoming a big boy ~ and it is working out really well that he is able to tell me when he needs to sit to "poop". No accidents yet!
About my only complaint is that when you dump it, it kinda makes a mess on the very edge of the toilet. I just wipe that up with toilet tissue, but besides that I am very happy with the product and it doesn't take up any space in my small bathroom.
I would recommend this product to anyone that has a boy potty training. Not just special needs. I wish I had this years ago for Kenny and Andrew!
Outside public bathrooms have been a little better. We are using our portable/foldable potty seat . I haven't even tried holding him in the standing position again. He is at least urinating with the seat. But we are still having issues with noise in some stores and he really doesn't like his headphones anymore. I try singing ABC's (people probably think I am weird walking in and hearing that! :). I am trying to keep those stores in the back of my head and just avoid them for now.
I am very proud of Jonathon!
I really think technically Jonathon is potty trained. He never has an accident. He is sometimes just a tad damp, but that could be drippage after going or just before he goes. As long as we take him potty he is great. I cannot wait for the day that my son tells me all on his own that he needs to go. He has done this 3x. It's a start. And that's why I still say Potty Training!
And here is the link again to a great product!
http://www.pottyscotty.com/Urinal-for-Boys.html
He is becoming a big boy ~ and it is working out really well that he is able to tell me when he needs to sit to "poop". No accidents yet!
About my only complaint is that when you dump it, it kinda makes a mess on the very edge of the toilet. I just wipe that up with toilet tissue, but besides that I am very happy with the product and it doesn't take up any space in my small bathroom.
I would recommend this product to anyone that has a boy potty training. Not just special needs. I wish I had this years ago for Kenny and Andrew!
Outside public bathrooms have been a little better. We are using our portable/foldable potty seat . I haven't even tried holding him in the standing position again. He is at least urinating with the seat. But we are still having issues with noise in some stores and he really doesn't like his headphones anymore. I try singing ABC's (people probably think I am weird walking in and hearing that! :). I am trying to keep those stores in the back of my head and just avoid them for now.
I am very proud of Jonathon!
I really think technically Jonathon is potty trained. He never has an accident. He is sometimes just a tad damp, but that could be drippage after going or just before he goes. As long as we take him potty he is great. I cannot wait for the day that my son tells me all on his own that he needs to go. He has done this 3x. It's a start. And that's why I still say Potty Training!
And here is the link again to a great product!
http://www.pottyscotty.com/Urinal-for-Boys.html
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