New Things

So I took Jonathon to WIC on Wednesday for his 6 month check up ~ which actually we were on a 3 month check up for a couple of times.  They wanted me to see if I could get Jonathon's weight up.

He weighed 27lbs 12oz last time ~ he weighed 27lbs 12 oz this time.  But he just got over being sick with a viral infection and was out of school over 1 week.  So me as a parent ~ I am not concerned with his weight.  When we had a recheck at the pediatrician he actually gained over 1lb and they had him at 28.8.  I don't know why the scale at WIC is so different.

So once again I am supposed to work on getting more weight on him.  Back to carnation instant breakfast drinks ~ I am actually going to try Pediasure ~ maybe he will like that ~ who knows.  Peanut Butter on everything ~ ok I never thought to put peanut butter on waffles, pancakes and french toast ~ he likes peanut butter and jelly so we will try.

Dried fruit ~ so I bought raisins ~ umm not happening ~ but no one in this house likes raisins, so I am not surprised.

Sugar ~ brown sugar ~ syrup......now here I thought sugar was bad for you!  so I am not too sure about that one either.

Cheese on everything ~ we already do this ~ he loves cheese!

And lets see ~ I am 4ft 11in and weigh 116 - hubby is 6ft 1 and weighs 187 - Andrew is 5ft 6 and weighs 134 and kenny is 5ft 3 and weighs 102 - soooo I don't think Jonathon's weight is a problem. And he is very very active!

But ok, I will try and see what happens.

Here is the result of this morning ~ Jonathon loves blueberry waffles, always eats all his blueberry waffles

peanut butter added

left overs

So adding peanut butter did not work ~ Jonathon ended up eating less than before and ummm sorry but this is not the way to gain weight ~ this is the way to lose weight!

And it's almost celebration time ~ 6 days until HAPPY HEART DAY ~ 3yr ANNIVERSARY

Evaluation Day

was today.  I was a little misinformed though, it was only for P.T.  He will remain seeing O.T. once per week for 30 minutes.  His evaluation is in December for her.


We had to change our time for future classes with O.T.  There is a little boy Caden that is in the room with Jonathon.  When we see O.T. he is seeing P.T. and he just is not happy and yells and cries and Jonathon just can't stand it.  It upsets him to the point where he starts crying.  Today I had to put his potty headphones on, to continue learning with his teacher.  Even though we won't be seeing P.T. any longer I had to address this issue with both O.T. and P.T.  I won't have Jonathon upset, because then it's just a waste of time to be there.  My P.T. (Miss Jen) whom we just got back and won't be seeing anyway totally agreed and said she would not put Jonathon through that again.  Our new time is 9:30 -10:00a.m. on Tuesdays with O.T.(Miss Amanda).  Our homework is to put money into the slot in the piggy bank(a real bank - not a toy).


P.T. evaluated Jonathon and confirmed that he does not need her services any longer.  She will stay on as a consult(meaning that we can say anytime that we need to see her and we will be able to see her.  And if we feel services are needed she will see us again.)  I am happy that Jonathon is doing so well, but at the same time I am a little nervous about not seeing her any longer.  But she will remain at Memphis schools to see other children and I have her cell number and her number at her main school sooo she is only a phone call away.  She gave me some things to work on with Jonathon.


To start climbing up on a bench and "jump" off. (which is so weird - I tell him not to climb and not to jump - what was I thinkin (lol).  I do see the point.


walk backwards for 5 or more steps - he can walk backwards, but its with a toy - he needs to do without a toy


walk up and down stairs without assistance - he can walk up and down with assistance. - this we are starting to do everyday from now on.


Run, run run - he is almost there


continue core exercises on workout ball


climb up big slide without assistance and slide down slide


jump, jump, jump


will be looking into getting a small trampoline


Goal is for him to be able to go out on the playground next year for preschool and be safe.  P.T. will re evaluate him next Spring.


Nervous, but we will work work work and continue to strive toward a safe happy life!

Another year gone......

Today was Jonathon's last day of school. He is on summer vacation for 1 week and then we will start summer services with P.T. Summer services will be every Wednesday til sometime in August.

I was a little worried how well he would do today. We are usually at school for 1 hour. Today we were at school for 2 1/2 hrs. Suprisingly he did quite well, especially since he got up at 5:30a.m. instead of 6:30a.m. and did not get a morning nap because we were at school.

The teacher had different activity centers inside and games outside. Jonathon got to pick a sticker book and add different stickers to it~he let the teachers son put a tattoo on his hand~he got to get some huge sidewalk chalk~bubbles with a nonspill proof container to keep them in~a little story book~notebook with crayons for scribbling~juice box and snacks.

Outside some of the games were Go Fish(of course Jonathon seen a pool with water and decided it was for swimming) Yep, good thing we had along a change of clothes. Ring Toss game and bean bag game. That was fun.

The teachers and I had a quick meeting at the end of the day. O.T. explained to me that when school starts in the fall that Jonathon might not be with her much longer. He is doing very well and pretty much on track for main stream school.(I am a very very proud mom). She also explained that if services are stopped with her, she will continue to stop by and check on us and if she or I feel that he needs to see her again she will set it up. So that makes me feel pretty good knowing that if I need her she will be there. She has been a great teacher for Jonathon. He really likes her alot.

P.T. also agreed that he might not be with her much longer after school starts up in the fall. This one I don't know about. I have mixed feelings here. I have read somewhere(down syndrome group or a blog) to never stop your P.T. services. I explained this to P.T. Her response was that usually by the time the children are in school(preschool) she doesn't see them any longer. Of course my long term goal is for Jonathon to be in main stream school and not need any services, but I don't want them stopped early if for some reason he still needs them. She also told me that even though children with Down Syndrome have low muscle tone, Jonathon is not that bad. Like I said this one I don't know about. She has been a good P.T. this year, but she is not like our previous P.T. we had last year. I am much more comfortable with my previous P.T. The first part of summer he will see P.T. we have now. The second part of summer he will see previous P.T. At that time I will let her know my concerns and see what she has to say.

Teacher was impressed with Jonathon today. She said she was going to say he needed to work on sitting still for 10 minutes or more focused on one thing. But he was doing great today. He was walking all over with no problem. He was going up to other children to make friends. He was playing peek a boo on his own with some adults. He was sitting and playing alone with some pegs and a peg board. I explained to her that Jonathon does very well. It's when we are at school and they insist he do this or do that on demand that irritates him. If they would just give him time and sit back more they would see that he is doing very well.

Our goals for the next 3 months are as follows:

To eat one meal independtly.(mac n cheese, apple sauce, nuggets etc) Right now he is just starting to feed himself oatmeal.
To continue to work on puzzles
To continue to work on coloring(lines and circles on the page)
beads on a pipe cleaner
go up steps alone
jump on a trampoline
jump up in air
and of course our hardest one TALK

Overall I am happy. I hope that Jonathon and I have a great summer and we get some more of our goals accomplished.



O.T., Jonathon, P.T., Teacher, and our Social Worker