Good news is that Jonathon passed his hearing test! Bad news is that now he has fluid in both ears! Good news the sweet oil seems to be working better than the peroxide was.
Surgery was discussed with me today. I discussed my opinion and the Dr. ENT discussed his opinion. Together we decided to wait 6 more weeks. Then we will go back for a recheck. If the fluid is still in both ears, then we will discuss MORE about surgery. Nothing else we can do at this time.
The reason we are waiting is because Jonathon's fluid comes and goes. Usually gone more than here. We(us and Dr. ENT) do not want to put Jonathon through surgery if we do not have too. At this point I am not worried.
Wednesday, September 30, 2009
Thursday, September 24, 2009
Evaluation Day
was today. I was a little misinformed though, it was only for P.T. He will remain seeing O.T. once per week for 30 minutes. His evaluation is in December for her.
We had to change our time for future classes with O.T. There is a little boy Caden that is in the room with Jonathon. When we see O.T. he is seeing P.T. and he just is not happy and yells and cries and Jonathon just can't stand it. It upsets him to the point where he starts crying. Today I had to put his potty headphones on, to continue learning with his teacher. Even though we won't be seeing P.T. any longer I had to address this issue with both O.T. and P.T. I won't have Jonathon upset, because then it's just a waste of time to be there. My P.T. (Miss Jen) whom we just got back and won't be seeing anyway totally agreed and said she would not put Jonathon through that again. Our new time is 9:30 -10:00a.m. on Tuesdays with O.T.(Miss Amanda). Our homework is to put money into the slot in the piggy bank(a real bank - not a toy).
P.T. evaluated Jonathon and confirmed that he does not need her services any longer. She will stay on as a consult(meaning that we can say anytime that we need to see her and we will be able to see her. And if we feel services are needed she will see us again.) I am happy that Jonathon is doing so well, but at the same time I am a little nervous about not seeing her any longer. But she will remain at Memphis schools to see other children and I have her cell number and her number at her main school sooo she is only a phone call away. She gave me some things to work on with Jonathon.
To start climbing up on a bench and "jump" off. (which is so weird - I tell him not to climb and not to jump - what was I thinkin (lol). I do see the point.
walk backwards for 5 or more steps - he can walk backwards, but its with a toy - he needs to do without a toy
walk up and down stairs without assistance - he can walk up and down with assistance. - this we are starting to do everyday from now on.
Run, run run - he is almost there
continue core exercises on workout ball
climb up big slide without assistance and slide down slide
jump, jump, jump
will be looking into getting a small trampoline
Goal is for him to be able to go out on the playground next year for preschool and be safe. P.T. will re evaluate him next Spring.
Nervous, but we will work work work and continue to strive toward a safe happy life!
We had to change our time for future classes with O.T. There is a little boy Caden that is in the room with Jonathon. When we see O.T. he is seeing P.T. and he just is not happy and yells and cries and Jonathon just can't stand it. It upsets him to the point where he starts crying. Today I had to put his potty headphones on, to continue learning with his teacher. Even though we won't be seeing P.T. any longer I had to address this issue with both O.T. and P.T. I won't have Jonathon upset, because then it's just a waste of time to be there. My P.T. (Miss Jen) whom we just got back and won't be seeing anyway totally agreed and said she would not put Jonathon through that again. Our new time is 9:30 -10:00a.m. on Tuesdays with O.T.(Miss Amanda). Our homework is to put money into the slot in the piggy bank(a real bank - not a toy).
P.T. evaluated Jonathon and confirmed that he does not need her services any longer. She will stay on as a consult(meaning that we can say anytime that we need to see her and we will be able to see her. And if we feel services are needed she will see us again.) I am happy that Jonathon is doing so well, but at the same time I am a little nervous about not seeing her any longer. But she will remain at Memphis schools to see other children and I have her cell number and her number at her main school sooo she is only a phone call away. She gave me some things to work on with Jonathon.
To start climbing up on a bench and "jump" off. (which is so weird - I tell him not to climb and not to jump - what was I thinkin (lol). I do see the point.
walk backwards for 5 or more steps - he can walk backwards, but its with a toy - he needs to do without a toy
walk up and down stairs without assistance - he can walk up and down with assistance. - this we are starting to do everyday from now on.
Run, run run - he is almost there
continue core exercises on workout ball
climb up big slide without assistance and slide down slide
jump, jump, jump
will be looking into getting a small trampoline
Goal is for him to be able to go out on the playground next year for preschool and be safe. P.T. will re evaluate him next Spring.
Nervous, but we will work work work and continue to strive toward a safe happy life!
Wednesday, September 23, 2009
Tuesday, September 22, 2009
First day of school
Jonathon had a great first day of school today. He remembered his teachers and did very well with them. And in return they seemed to be pleased where he is at.
Speech teacher seemed pleased with his progress. We didn't get very much time with her because she had the schedule wrong. So we kinda missed our time with her.
The teacher said he is doing great. He played by himself for about 20 minutes while we discussed some things before going onto another toy. She said this is what they do in preschool - switch stations every 20 minutes - so that was good. Jonathon talked to the teacher and actually did not want to leave.
Found out that my original p.t. from Capac - Miss Jen - is at Memphis this year. I am so happy. And sad. I love her - but Jonathon is being evaluated on Thursday with o.t. and p.t. to see if he needs to continue services or is finished with their services. O.T. I agree, he is probably finished - he is doing awesome!!!! P.T. - he is doing fine, but I just don't know if I want to cancel services. I want to make sure he is getting the best therapy and I am good, but I am not them. They are trained to do this. So we will see.
Totally forgot to take 1st day pictures. Don't know what I was thinking. Guess I will get pictures on THursday instead. Very happy with today. We are off to a good start.
Teacher also gave me a heads up that sometime this year depending on how Jonathon is doing she wants him to spend some time in her actual preschool class to help prepare for next year. Sure no problem. Excited about that. But wow! Preschool. Doesn't seem real.
Speech teacher seemed pleased with his progress. We didn't get very much time with her because she had the schedule wrong. So we kinda missed our time with her.
The teacher said he is doing great. He played by himself for about 20 minutes while we discussed some things before going onto another toy. She said this is what they do in preschool - switch stations every 20 minutes - so that was good. Jonathon talked to the teacher and actually did not want to leave.
Found out that my original p.t. from Capac - Miss Jen - is at Memphis this year. I am so happy. And sad. I love her - but Jonathon is being evaluated on Thursday with o.t. and p.t. to see if he needs to continue services or is finished with their services. O.T. I agree, he is probably finished - he is doing awesome!!!! P.T. - he is doing fine, but I just don't know if I want to cancel services. I want to make sure he is getting the best therapy and I am good, but I am not them. They are trained to do this. So we will see.
Totally forgot to take 1st day pictures. Don't know what I was thinking. Guess I will get pictures on THursday instead. Very happy with today. We are off to a good start.
Teacher also gave me a heads up that sometime this year depending on how Jonathon is doing she wants him to spend some time in her actual preschool class to help prepare for next year. Sure no problem. Excited about that. But wow! Preschool. Doesn't seem real.
Friday, September 18, 2009
Potty Training Update
So potty training is had some set backs. Nothing major, just some things that Jonathon has to work through, I guess.
At home he is doing exceptionally well. He wears big boy undies at home now for part of the day ~ he could probably go all day at home with minimal accidents, but when I know I am going to be busy doing something and don't want to take the chance of a major accident I put him back in pull ups. Which I am not sure why, because I am very good at remembering to take him every 1-2 hours. Minimal accidents(this is when he is just damp). He has only been major major wet in a pull up 3x since Feb 08. And sorry I have to say this, but this has been with his father, not me. His father really needs to get on board more. I mean come on, its been almost 1 year since we started potty training..... Oh and another thing his father needs to do is get his lazy butt out of bed on the weekends and take Jonathon potty first thing in the morning. NOT put him in bed with us and take him potty in 15-20 minutes. SHEEEEESH!!!!! Can u tell I am irritated? Well I am.
Anyway ~ our set back is public restrooms. Why I don't know. It used to be only certain stores with certain loud echo restrooms(the mall, Meijer, Target) Usually Walmart and Krogers are pretty safe. Not this time around. I spent the whole day out with my sis on Tuesday. Jonathon literally held it all day ~ 7 hours we were gone......He would pee just a tad bit. He just kept fighting me all day. I even had his headphones and he still wasn't going to pee for me. I figured I would just have to change him after he wet. No, that didn't happen either. I did continue to offer the restroom for the whole day and like I said he would pee a little, but when he got home, boy did he let loose. I do not like him holding it and not sure what I will try next.
My next concern is tomorrow(Saturday). I am going to a mom2mom sale to try and sell some of Jonathon's things. He cannot go with me because this particular sale is located in a gym. Jonathon does not doe gyms very well. Actually not at all. He would not tolerate it for more than 2 minutes. He is staying home with his father.
First off, I am going to do this mom2mom sale even though I have issues about leaving Jonathon behind because winter is coming and I really don't want to store these items AND it's really close to home.
Second, I am worried about my little boy being left out and forgotten. Pretty bad to say about his father, but I have issues.
1. His father cannot understand sign language_not like I haven't tried to teach him.
2. His father cannot understand his speech ~ I give up translating, I just refuse to anymore.
3. Jonathon won't ask for a drink unless he is extremely thirsty. His father forgets to offer.
4. Potty Break ~ this is my big one. I am so worried that he is going to forget to take Jonathon potty and he has been doing excellent for almost 1 year. (no poopy pants EVER, and like I said minimal wetness)
5. Food ~ please feed my child while I am gone, he won't ask unless he is really hungry.
These are not things that just started, these are things that have been on going for 2 years and I just keep it to myself. AND Jonathon is ALWAYS with me, so there is never any real concern. Til now. The longest I have left him is maybe 2 hours at the most for 2 years. RIDICULOUS I know....Trust me it's not like I haven't tried. But if I don't think you are trustworthy to watch Jonathon then you won't. And my hubby, well he don't have time.
So I will make a list of what and what nots and hopefully all will go well for Jonathon tomorrow. One can wish!
At home he is doing exceptionally well. He wears big boy undies at home now for part of the day ~ he could probably go all day at home with minimal accidents, but when I know I am going to be busy doing something and don't want to take the chance of a major accident I put him back in pull ups. Which I am not sure why, because I am very good at remembering to take him every 1-2 hours. Minimal accidents(this is when he is just damp). He has only been major major wet in a pull up 3x since Feb 08. And sorry I have to say this, but this has been with his father, not me. His father really needs to get on board more. I mean come on, its been almost 1 year since we started potty training..... Oh and another thing his father needs to do is get his lazy butt out of bed on the weekends and take Jonathon potty first thing in the morning. NOT put him in bed with us and take him potty in 15-20 minutes. SHEEEEESH!!!!! Can u tell I am irritated? Well I am.
Anyway ~ our set back is public restrooms. Why I don't know. It used to be only certain stores with certain loud echo restrooms(the mall, Meijer, Target) Usually Walmart and Krogers are pretty safe. Not this time around. I spent the whole day out with my sis on Tuesday. Jonathon literally held it all day ~ 7 hours we were gone......He would pee just a tad bit. He just kept fighting me all day. I even had his headphones and he still wasn't going to pee for me. I figured I would just have to change him after he wet. No, that didn't happen either. I did continue to offer the restroom for the whole day and like I said he would pee a little, but when he got home, boy did he let loose. I do not like him holding it and not sure what I will try next.
My next concern is tomorrow(Saturday). I am going to a mom2mom sale to try and sell some of Jonathon's things. He cannot go with me because this particular sale is located in a gym. Jonathon does not doe gyms very well. Actually not at all. He would not tolerate it for more than 2 minutes. He is staying home with his father.
First off, I am going to do this mom2mom sale even though I have issues about leaving Jonathon behind because winter is coming and I really don't want to store these items AND it's really close to home.
Second, I am worried about my little boy being left out and forgotten. Pretty bad to say about his father, but I have issues.
1. His father cannot understand sign language_not like I haven't tried to teach him.
2. His father cannot understand his speech ~ I give up translating, I just refuse to anymore.
3. Jonathon won't ask for a drink unless he is extremely thirsty. His father forgets to offer.
4. Potty Break ~ this is my big one. I am so worried that he is going to forget to take Jonathon potty and he has been doing excellent for almost 1 year. (no poopy pants EVER, and like I said minimal wetness)
5. Food ~ please feed my child while I am gone, he won't ask unless he is really hungry.
These are not things that just started, these are things that have been on going for 2 years and I just keep it to myself. AND Jonathon is ALWAYS with me, so there is never any real concern. Til now. The longest I have left him is maybe 2 hours at the most for 2 years. RIDICULOUS I know....Trust me it's not like I haven't tried. But if I don't think you are trustworthy to watch Jonathon then you won't. And my hubby, well he don't have time.
So I will make a list of what and what nots and hopefully all will go well for Jonathon tomorrow. One can wish!
Sunday, September 13, 2009
Random Thoughts
I received a phone message from Jonathon's teacher Friday evening. First day of school is September 22nd. Time is 11:15a.m. til 12:15p.m. 1/2 hour with teacher and 1/2 hour with speech teacher(same as last year).
Teacher also explained in my phone message that he will have school on Thursday September 24th with his O.T. Amanda and P.T. Annette. Time will be 10:30a.m. til 11:30a.m. Now on his first day back with O.T. and P.T. they will be doing an assessment and deciding if Jonathon will continue with them this school year or they will be releasing him and I can keep in contact with them both and go back to them if needed. O.K. I have mixed feelings on this. Yes, Hooray!!!! My goal all along has been for Jonathon to be able to mainstream in public school. Goal....not even comprehending that it could be preschool when he actually starts mainstream. I believe this is every mothers dream. I am also nervous......should I allow them to stop their services with Jonathon?
I spoke my concerns with my original P.T. Jen over the summer. (Jonathon was able to work with her for 3 weeks, once per week) Which Jen says Jonathon is doing wonderful and I should be proud....which I am. (very proud). She also told me to just make sure I state it correctly that I want to be able to contact them anytime for them to see Jonathon again if I feel it's needed.
Do I think he needs O.T. services anymore? If I compare Jonathon to my older boys(yes I am comparing) no, I do not think he needs O.T. He is doing everything and more of the same as them at this age.
Do I think he needs P.T. services anymore? This one I am not so sure on. Yes he is walking. Walking great. Not running yet. He can climb stairs up and down with my help. Not on his own yet. We are working on jumping. He is very strong and is able to stand up in the middle of the room without using his arms,hands for support anymore. When we go shopping I still usually carry him into the store, he gets distracted very easily and it's just time consuming to let him walk sometimes. Plus its weird, because Andrew and Kenny were able to go up and down the stairs on their butts at this age, but being that Jonathon has down syndrome he isn't allowed. He is supposed to do it the big boy(adult way). Sometimes I feel that they push our children with special needs way too far too fast and don't let them just be "kids" "toddlers".
So I am a little nervous about next week. I also know deep down that when the time comes I will know what to do and how to handle it. I just hate waiting and thinking........ I think I will make sure my social worker is there that day with me.
Teacher also explained in my phone message that he will have school on Thursday September 24th with his O.T. Amanda and P.T. Annette. Time will be 10:30a.m. til 11:30a.m. Now on his first day back with O.T. and P.T. they will be doing an assessment and deciding if Jonathon will continue with them this school year or they will be releasing him and I can keep in contact with them both and go back to them if needed. O.K. I have mixed feelings on this. Yes, Hooray!!!! My goal all along has been for Jonathon to be able to mainstream in public school. Goal....not even comprehending that it could be preschool when he actually starts mainstream. I believe this is every mothers dream. I am also nervous......should I allow them to stop their services with Jonathon?
I spoke my concerns with my original P.T. Jen over the summer. (Jonathon was able to work with her for 3 weeks, once per week) Which Jen says Jonathon is doing wonderful and I should be proud....which I am. (very proud). She also told me to just make sure I state it correctly that I want to be able to contact them anytime for them to see Jonathon again if I feel it's needed.
Do I think he needs O.T. services anymore? If I compare Jonathon to my older boys(yes I am comparing) no, I do not think he needs O.T. He is doing everything and more of the same as them at this age.
Do I think he needs P.T. services anymore? This one I am not so sure on. Yes he is walking. Walking great. Not running yet. He can climb stairs up and down with my help. Not on his own yet. We are working on jumping. He is very strong and is able to stand up in the middle of the room without using his arms,hands for support anymore. When we go shopping I still usually carry him into the store, he gets distracted very easily and it's just time consuming to let him walk sometimes. Plus its weird, because Andrew and Kenny were able to go up and down the stairs on their butts at this age, but being that Jonathon has down syndrome he isn't allowed. He is supposed to do it the big boy(adult way). Sometimes I feel that they push our children with special needs way too far too fast and don't let them just be "kids" "toddlers".
So I am a little nervous about next week. I also know deep down that when the time comes I will know what to do and how to handle it. I just hate waiting and thinking........ I think I will make sure my social worker is there that day with me.
Wednesday, September 9, 2009
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